Thank you

Thank you to the Alstrom community and all the professionals, clinicians and researchers who give their time and dedication to learn more about this ultra-rare condition.

Through collaborating our efforts, learning from each other and joining together our knowledge and experience we will discover further insights, leading to targeted treatments and approaches.

If you would like to get involved in our work, please get in touch.


Alström Europe wish to acknowledge the immense work of Dr Jan Marshall; her dedication, advocacy for patients and support for clinicians.

jan marshall about alstrom europe