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alstrom europe generic news image

Rare Metabolic and Diabetic Diseases Meeting

19th June 2017

Taking place 29-30 September, 2017 at Palazzo della Salute, Padua, Italy. An itinerary can be viewed here.

alstrom syndrome europe wins award

Award winning Alström Syndrome Europe

15th June 2017

Kay Parkinson was awarded “Champion of Hope Award 2017”, at the Genetic Disorders UK conference in March. The award was for setting up Alström Syndrome Europe.

alstrom syndrom europe meeting

The annual ASEU meeting planned for September 29-30th 2017

15th June 2017

Previous meetings have been held as follows: 2014 – ASEU Meeting in Birmingham, UK; 2015 – ASEU Meeting in Italy; 2016 – ASEU Meeting in Madrid. Pictured are Alström Syndrome members at the inaugural meeting of ASEU in 2013, hosted by Professor Helene Dollfus in Strasbourg.

prometic's drug receives orphan drug designation

Prometic’s PBI-4050 drug receives Orphan Drug Designation

20th May 2017

European Commission grants Orphan Drug Designation to Prometic’s PBI-4050 drug for the treatment of Alström Syndrome.