For further information on Alström Syndrome Patient Support Groups see:

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RareConnect
Connecting rare disease support groups globally

For further information on Alström Syndrome see:

Gene Reviews
This article on Gene reviews provides a good review of the condition.
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Orphanet
Orphanet is an online database of rare diseases and related services provided through Europe. It contains information on over 5,000 conditions and lists specialised clinics, diagnostic tests, patient and organizations, research projects and trials.

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Euro-WABB
The EURO-WABB Project is a collaboration of doctors, scientists and patient support groups from all over Europe. This website provides information on Wolfram Syndrome and other rare genetic forms of diabetes.
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ResearchGate
The latest papers on Alström can be searched here.
RareOmics
The latest scientific papers on rare diseases.

The following clinicians are working alongside Alström Europe. To download Alström Syndrome patient guidelines to give to patients click here.

alstrom europe france

France
Professor Helene Dollfus
Institut de Génétique Médicale d’Alsace (IGMA) Centre de référence pour les affections rares en génétique ophtalmologique (CARGO) Service de Génétique – Hôpitaux Universitaires de Strasbourg Laboratoire de génétique Médicale INSERM U1112 Faculté de Médecine
11 Rue Humann, F – 67000, Strasbourg
Tél: +33 (0)3 88128120
Email: dollfus@unistra.fr / helene.dollfus@chru-strasbourg.fr

Italy
Dr Pietro Maffei
Laboratorio Endocrino Metabolico – Clinica Medica 3,
Dipartimento di Medicina,
Azienda Ospedaliera di Padova,
Via Giustiniani 2,
35128 Padova,
Italy
Email: pietromaffei@libero.it
Spain
Prof Diana Valverde, Dept. Bioquímica, Genética e Inmunología, Facultad de Biología, Campus Lagoas Marcosende, 36310 Vigo
Email: dianaval@uvigo.es
Sweden
Professor Claes Moller MD, PhD, Dept Audiology, Orebro University Hospital, 70185 Orebro, Sweden
Telephone: +46 19703738099   Email claes.moller@regionorebrolan.se
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Turkey
Doç. Dr. Selma DÜZENLİ, Abant İzzet Baysal Üniversitesi, Tıp Fakültesi, Tıbbi Genetik AD, 14280- BOLU-TR
Tel: +90 374 2534656/3083
UK
Dr Tarek Hiwot, University of Birmingham, Edgbaston, Birmingham, B15 2TT, United Kingdom
Telephone: +44 (0)121 371 6982
Email: t.g.hiwot@bham.ac.uk / tarekegn.hiwot@uhb.nhs.uk